To , I have to ask, your email is a joke, right? I contacted the concerns team and health board to discuss how poorly I was treated by one of your doctors. His views on me and lack of understanding for my other health conditions has meant that I have no support in managing this condition. I live with … Continue reading The Letter I Wish I Could Send The Hospital Health Board
What is Purple Tuesday? Purple Tuesday is a UK accessible shopping day to recognise and raise awareness of the needs of disabled consumers with the aim to promote inclusive shopping. Purple Tuesday takes place Tuesday 13th November 2018 i.e. Today! Purple Tuesday is Coordinated by the UK disability charity ‘Purple’ and is endorsed by the Department of Work and Pensions. Purple Tuesday is also supported … Continue reading Accessibility to Retail Shops – Purple Tuesday
Simply, no we don’t really. I know this post is a little over due but I thought I still may as well write it as I’d like to try to keep you all as up to date as I can through my medical life. Back in May I had my much awaited first Gastro Appointment in Cardiff with my new Consultant. Before I go into … Continue reading What does Oesophageal Dysmotility Consist of For Me & Do I have a Plan?
Back in June I saw my new Pain Management Consultant(s). I have to say I was extremely worried before this appointment as I didn’t really know what to ask for anymore especially after a very unsuccessful appointment in my previous hospital. I went in with no expectations and I left with more than I was expecting. I will try my best to write out my … Continue reading My New Pain Management Plan
UGGHH TO HYPERMOBILITY! Last week I had a lot of odd feelings and pains in my arm/shoulder. It felt really heavy, tingly, loose etc I’m pretty sure it has been slipping and been close to subluxing or has been subluxing. When I woke up on Sunday morning I felt as though I couldn’t breathe as my pain was so intense. I assume I subluxed my … Continue reading It Only Takes One Person (+ Subluxing My Shoulder)
I know this post should have been up a long time ago and for that I do apologise. Particularly as if it weren’t for all the wonderful people in my life and the people that read my blogs I wouldn’t have the E-Fix or the independence I now have. From the very second I sat in my chair with new, fancy, motorised wheels it has … Continue reading Regaining my Independence with the Alber E-Fix!
Does my disability define me? Yes, I think it does. My disability is the reason I am who I am. However, it is not all that I am. Let me guess, you were expecting some my disability does not define me crap? Of course it does but as I say it is not all that I am. I am a girlfriend, daughter, granddaughter, niece, cousin, … Continue reading Does My Disability Define Me & Am I Ashamed?
I thought it was time I shared my experience with Country Side Mobility. Country Side Mobility is a not-for-profit mobility equipment hire scheme. They work to improve access to the country side for people with limited mobility with Trampers (a type of mobility scooter) and Wheelchairs with off road wheels. The scheme runs within the South West Region, for those living within the South West … Continue reading Country Side Mobility
Good Afternoon Everyone, I hope you are all as well as can be. Well, there is no point in me blabbering on given the title of this blog post I might as well tell you now that I AM MOVING!! I will put it out there now that I am extremely excited and I haven’t stopped smiling since the news was finalised yesterday! Thanks to … Continue reading I’m Moving!
Due to the support I have received I will assume that my regular viewers are all aware that I am currently fundraising for a Power Assist Add On for my wheelchair. The Alber E-Fix 35 (You can find out more about this piece of equipment here). I thought I should take some time to explain why raising the money for this amazing piece of equipment … Continue reading My Goal for Independence.
theworldinmywords.wordpress.com 