AD| Affiliate Link *Disclaimer: I am not a medical professional and I am sharing my own personal experiences.* 1. If you can do it laying down, do it laying down! Sitting upright can be challenging when living with PoTS. So use your upright time wisely by doing everything you can laying down. Split your upright time between things you have to do like chores and … Continue reading 5 Tips for Living with PoTS
I’ve been asked by a few people lately why I add an image description to the bottom of my Instagram posts. So I thought I would answer that question today. I didn’t fully understand Alt Text/Image Descriptions (ID) until about a year ago and it wasn’t until more recently that I knew how they worked or how to add them to my social media/blog. What … Continue reading Why I Add Alt Text/Image Descriptions to My Posts
To , I have to ask, your email is a joke, right? I contacted the concerns team and health board to discuss how poorly I was treated by one of your doctors. His views on me and lack of understanding for my other health conditions has meant that I have no support in managing this condition. I live with … Continue reading The Letter I Wish I Could Send The Hospital Health Board
Yesterday, 25th October 2019 was the first annual #PotsAwarenessDay! PoTS, Postural Orthostatic Tachycardia Syndrome also comes under the term Dysautonomia. PoTS is an abnormality of the functioning of the autonomic (involuntary) nervous system. The autonomic nervous system is in charge of all our bodily functions that we don’t have to think about including: heart rate regulation, blood pressure regulation, digestion, bladder control, sweating and stress … Continue reading PoTS Awareness Day 2019 – What is PoTS?
As a society we use our words and twist them to be something they’re not. We recreate the definition of a word to spite each other. Continue reading Disabled isn’t a Dirty Word
The big cardiology appointment. I was expecting to write one of two posts. One would be me celebrating a diagnosis, we finally had a name for the symptoms and the months of feeling so poorly. The second would be me yelling PLOT TWIST as something completely new and random popped up. What I am going to write is neither. I have a diagnosis, in fact … Continue reading I have PoTS – Cardiology Update
Up at The O2 Review Since James and I started dating we’ve really enjoyed purchasing an experience for one another for a Birthday or Christmas gift. So far we’ve done Go Ape, London Theatre and Gigs. I love doing this as these are things we may otherwise not spend our money on. These are things we can do together. In our unconventional busy life having … Continue reading Up at The O2 Wheelchair Review & How it Works
Last Saturday I had a Gastroscopy. Yes, on a Saturday! That possibly felt the most unfair of all of it. What is a Gastroscopy? For a Gastroscopy they used something called a Gastroscope which has a camera attached to look at the inside of the food pipe, the stomach and the first part of the intestine (duodenum). Doing this allows them to diagnose some conditions … Continue reading My Gastroscopy Experience – What is a Gastroscopy?
May is M.E./CFS Awareness Month and I had been planning to write at least one but hopefully three blog posts as well as many Instagram posts. However, ironically I have been too fatigued to do so. I have been sat here for at least a week trying to give you the facts and figures to raise awareness for M.E./CFS. Although facts and figures are important … Continue reading Things to Know About M.E./CFS
Naidex 2019 What is Naidex? Naidex is a trade, professional and public event which is dedicated to the care, rehabilitation and lifestyle of people with a disability or impairment. Which has now been running for 45 years and is Europe’s most established trade, professional and public event for care and rehabilitation for disability and impairment. Naidex is held at the National Exhibition Centre in Birmingham … Continue reading Naidex 2019