The big cardiology appointment. I was expecting to write one of two posts. One would be me celebrating a diagnosis, we finally had a name for the symptoms and the months of feeling so poorly. The second would be me yelling PLOT TWIST as something completely new and random popped up. What I am going to write is neither. I have a diagnosis, in fact … Continue reading I have PoTS – Cardiology Update
Up at The O2 Review Since James and I started dating we’ve really enjoyed purchasing an experience for one another for a Birthday or Christmas gift. So far we’ve done Go Ape, London Theatre and Gigs. I love doing this as these are things we may otherwise not spend our money on. These are things we can do together. In our unconventional busy life having … Continue reading Up at The O2 Wheelchair Review & How it Works
Last Saturday I had a Gastroscopy. Yes, on a Saturday! That possibly felt the most unfair of all of it. What is a Gastroscopy? For a Gastroscopy they used something called a Gastroscope which has a camera attached to look at the inside of the food pipe, the stomach and the first part of the intestine (duodenum). Doing this allows them to diagnose some conditions … Continue reading My Gastroscopy Experience – What is a Gastroscopy?
May is M.E./CFS Awareness Month and I had been planning to write at least one but hopefully three blog posts as well as many Instagram posts. However, ironically I have been too fatigued to do so. I have been sat here for at least a week trying to give you the facts and figures to raise awareness for M.E./CFS. Although facts and figures are important … Continue reading Things to Know About M.E./CFS
Naidex 2019 What is Naidex? Naidex is a trade, professional and public event which is dedicated to the care, rehabilitation and lifestyle of people with a disability or impairment. Which has now been running for 45 years and is Europe’s most established trade, professional and public event for care and rehabilitation for disability and impairment. Naidex is held at the National Exhibition Centre in Birmingham … Continue reading Naidex 2019
Today marks 1 Year with my Alber E-Fix. I cannot believe it has been a whole year. I feel like I have done so much thanks to the E-Fix in not much time at all. On the other hand, I feel like I’ve have the E-Fix forever. I feel like I know the E-Fix, what it can and can’t do and how to manoeuvre it. Surprisingly … Continue reading One Year with the Alber E-Fix
As someone with a disability, previous crutches user, walking stick user and now a wheelchair user I can tell you that the offers of help I get or have had when out and about are a little like marmite. People either really go for it or they stay well clear. Quite often people will offer to help me with a door, reaching for my bag … Continue reading Does Helping Me Make You Feel Good?
What is Purple Tuesday? Purple Tuesday is a UK accessible shopping day to recognise and raise awareness of the needs of disabled consumers with the aim to promote inclusive shopping. Purple Tuesday takes place Tuesday 13th November 2018 i.e. Today! Purple Tuesday is Coordinated by the UK disability charity ‘Purple’ and is endorsed by the Department of Work and Pensions. Purple Tuesday is also supported … Continue reading Accessibility to Retail Shops – Purple Tuesday
What is a CEA Card? The CEA Card is a national scheme that was developed for the UK by UKCA (the UK Cinema Association). The scheme helps to enable disabled people to access the cinema firstly, by providing you with a complimentary ticket for the person who goes with you i.e. a friend, family member, carer or personal assistant. Secondly, it can help enhance your … Continue reading Complimentary Companion Cinema ticket for the Disabled – What is a CEA Card?
Simply, no we don’t really. I know this post is a little over due but I thought I still may as well write it as I’d like to try to keep you all as up to date as I can through my medical life. Back in May I had my much awaited first Gastro Appointment in Cardiff with my new Consultant. Before I go into … Continue reading What does Oesophageal Dysmotility Consist of For Me & Do I have a Plan?