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*Disclaimer: I am not a medical professional and I am sharing my own personal experiences.*
1. If you can do it laying down, do it laying down!
Sitting upright can be challenging when living with PoTS. So use your upright time wisely by doing everything you can laying down. Split your upright time between things you have to do like chores and things you want to do like hobbies, dinner with family. Whatever you do try to find some balance.
2. STAY. HYDRATED. And use Electrolytes.
Tips on staying hydrated are probably better coming from someone who doesn’t spend most of her time dehydrated but it’s a problem not a choice.
Electrolytes can be really helpful in managing PoTS symptoms. I use Elete Electrolytes in any thing I do drink. They’re pricey but the best I’ve found so far. They are flavourless in that they’re not made to taste like lemon or blackcurrant however, electrolytes do taste salty.
It sounds pointless but I started with one drop in my drink and built it up from there to get used to the taste.
You can purchase Elete Electrolytes from Amazon here (affiliate link).
3. Move with Caution.
It takes some time getting use to moving at a slower pace and I still make this mistake all the time. When getting out of bed or off the sofa get up in stages. Take it slow even if you think you’ve got it. Whether you are laying down or sitting up still take it slow.
4. The Floor can be Your Friend.
If you’re prone to passing out or collapsing, you probably have a love hate relationship with the floor but the floor can be your friend.
I know that I’m not the only person with PoTS that does this although some think I’m crazy. When your PoTS symptoms are worse or feel overwhelming laying flat on the floor (a solid, flat surface) can help you feel grounded and more in control.
Give it a try if you haven’t before and let me know what you think.
5. TRUST YOURSELF.
It can be an incredibly long and difficult journey to a PoTS diagnosis but trust in yourself and your symptoms, don’t stop fighting for what you need. The same goes for those diagnosed and lacking proper management. Don’t give up, you know what your body needs.
For a list of PoTS Specialists in the UK you can find information on the PoTS UK website here.
You may also be interested in reading my post What is PoTS? That I wrote for Dysautonomia Awareness Month last year.
What’s your top tip for living with PoTS? Leave it in the comments below!
You can also follow me over on Instagram as I’m taking part in the #POTSUKChallenge on my main feed for October.
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